THE SADDEST THING I HAVE EVER READ!!!!

During Down Syndrome Awareness Week 2006 personal stories about and by a family who have two children with Down syndrome were published in newspapers. Referring to one of the articles we received a comment from a reader who expressed his views on the article.

Hi, I am writing about the article featured in the Saturday paper regarding the parents of 2 down syndrome little girls. To tell you the truth I would not want to be in those parent's shoes. My wife and I terminated two pregnancies once we found out our babies were going to be downs. There was no way we were going to bring special need babies into our family. Those parents in the paper say they are happy however deep inside I am sure they are struggling emotionally. They are not blind. Obviously they have not been around normal babies. With all the resources available nowadays to find out early about the genetics and gender of the baby, why would anybody put themselves thru this kind of life. Just wanted to share my views on this subject.

This is the saddest thing I have ever read. My mom sent it to me today. I cried as I read it, and have tears in my eyes as I read it now again. This one hits a little too close to home. I feel hurt and angry. I feel personally assaulted, offended. This makes me want to scream and yell and to act irrationally. I feel so frustrated! How can anyone think like that? I am deeply insulted. I can't think straight. My mind is going 100 miles an hour but nothing is being accomplished. I can't get my thoughts in order. I hate how wrong he is. How selfish he is. How mislead he is. I feel attacked. I feel disheartened. I feel maddened. I feel heartbroken. I feel discouraged.

Have the efforts put forth by those in the past been fruitless? Have we gone one step forward, three steps back? Will the barriers of misconception ever be brought down? Matthew has your perseverance been in vain?

Matthew, please know, I love you. Our whole family loves you. More people than we can count love you. We would never trade you for the world let alone exchange you for nothing. Matt, we struggle more when you are not around than when you are. We need you Matt. And please don't flatter yourself, your "needs" are no more "special" than those of anyone else. Matt I want to protect you from people like that. But I won't, you don't need my protection. You are inner strength personified. I aspire to one day have the work ethic, compassion for others and to take pleasure in the small things the way you do. You inspire without even knowing it. Never give up or give in (not that you would consider doing either). Swim fast. Never be anyone else but yourself, you are responsible for a small part of each of us and our family would not be the same without you. Never change, I...we want you just the way you are.

More than anything I feel sorry for the author of the above article. He has no idea of what he is missing in his life, twice over! I think though, that my mom put it best. The following is the final paragraph to her responce to the above letter. (if you would like to read the whole thing let me know)

You know JOHN, we have brought five children into this world and each of them has and will continue to have "special needs". There is no such thing as a "perfect child". It is unlikely that our son with Down syndrome grows up to be Prime Minister of this country, but it is also unlikely any of our other children will either. He will not get paid the salary of a school teacher, but he will spend his entire life teaching and showing those around him what can be accomplished through hard work. Already he has changed lives and he will continue to do so. "Why would anybody put themselves thru this kind of life"? Because it is not a burden, it has been and is a gift. We are so much the richer for it! And as I write this letter JOHN, I grieve for you, as it is a gift you will now never know.

I could not agree more!